Category Archives: Cystic Fibrosis

How To Get Kalydeco Funded In Canada

So – finally! – after Health Canada approved Kalydeco in November 2012 for use in Canada by CF patients aged six years and older who have the specific G551D mutation, it now appears this brilliant new medication will soon be … Continue reading

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Vertex Statement Following Meeting With Provincial Health Ministers

On Tuesday, May 13, Vertex met in Toronto with the Health Ministers from Alberta and the Yukon as part of our ongoing discussions regarding the public reimbursement of KALYDECO in Canada. “While we had a lengthy discussion, we have not … Continue reading

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Our Request to Ontario Premier Wynne To Fund Kalydeco Now!

May 8, 2014 Premier Kathleen Wynne Legislative Building Queen’s Park Toronto ON M7A 1A1 Re: Funding of the Drug Kalydeco As you are aware, I am the Chair of the Canadian Cystic Fibrosis Treatment Council an organization committed to ensuring … Continue reading

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Canadians are Paying more for Prescription Drugs than other Countries

While this country is still waiting for the Pan-Canadian Purchasing Alliance (PCPA) and Vertex Pharmaceuticals to come to an agreement regarding the cost of Kalydeco, Health Ministers of Ontario, Alberta and Yukon want to meet with the chief executive of … Continue reading

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Canada Wins Olympic Gold But Remains Well Out Of The Medals For Healthcare

And so another month has gone by without an agreement on Kalydeco funding. I guess it is a question of priorities, and as much as we should be very proud as Canadians to share the success of our Olympic athletes … Continue reading

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Sometimes It Is Not So Great To Be A Canadian

Under the headline “Why it’s great to be Canadian” – an online article on MSN Money last Monday concludes that Canada is a great place to live,  and this according to the Organisation for Economic Co-operation and Development (OECD)’s Better … Continue reading

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Negotiating A Price For Kalydeco

The problem with negotiating a price for Kalydeco in Canada is without question a complex one, and not just because of the astronomically high price Vertex wants for this miraculously effective drug. First of all, Vertex seems to hold all … Continue reading

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Australia Will Pay For Kalydeco Pending Agreement On Price With Vertex

Australia will pay for Kalydeco on behalf of  two hundred Australians with cystic fibrosis but before they receive their Christmas gift the drug company Vertex Pharmaceuticals that makes Kalydeco must negotiate a more reasonable price for its lifesaving treatment. And … Continue reading

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Good News About Kalydeco From Nova Scotia

Today we finally (!) had some good news regarding the funding of Kalydeco. In an interview with CBC’s Elizabeth Chiu, Nova Scotia Health Minister Leo Glavine stood up for CF patients, like Carys Nurse and Tim Vallillee, and committed to … Continue reading

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Public Funding of Kalydeco can be Cost-Effective

In a compassionate, caring society we should do everything in our power to help those who are affected by illness with the best possible care available to them.  As such there is an obligation to provide public funding for Kalydeco … Continue reading

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